The Fibromyalgia Community site is a privately developed website originally designed to support the Fibrom-L email support group.
In the last 2 years The Fibromyalgia Community has become a one stop source for information and resources about Fibromyalgia and now has a twice monthly newsletter with over 2500 subscribers.
Over the years we have helped over 550,000 people find support and help with their subscription questions for the listserv. I myself, remember finding the Fibromyalgia link in Devin Starlanyl's book. It opened up a whole new world of support and information for me, we would like to keep this alive for other, newly diagnosed folks who need answers and help from experienced FM survivors.
We try to provide current information, research,
notices of upcoming conferences, the newest books published and any advocacy or
political issues that will affect our healthcare or lifestyle. We are
proud of our efforts to educate and hope we can continue to do so for a long
time. We are working to improve and expand the site and we know we can only make
Until now, this site has been maintained and funded by private individuals with FM and overlapping disorders. These individuals paid for the domain name and continue to pay the monthly fees for the server space, out of their own pockets. We now find ourselves short of funding and unsure of the future of this website.
Our future looks brighter, as we have recently partnered with the CSSA a 501 c (3) non-profit organization dedicated to education for FM/CMP and umbrella disorders. Our partnership with the CSSA will allow us to stay alive, with your help.
Jane Kohler and Chip Davis
You can help us keep this site alive in
1) Send a donation to the CSSA
They will then earmark 100% of all donations to us when you designate Fibromyalgia Community in the memo portion of the check.
Send check or money order to:
The Chronic Syndrome Support Association, Inc.
(or CSSA, Inc.)
801 Riverside Dr
Lumberton, NC 28358-4625
or use your Visa or MasterCard though PayPal
Click Here to donate now:
Folks who are kind enough to help us stay alive will be listed on our new
page, with our thanks.
2) Buy From Amazon.com You can order all of your books, videos, DVDs and other items from Amazon.com through our website, all funds from sales made from our link go towards ISP fees and maintenance of this site.
3) Use The Fibromyalgia Community Store You can support the website and promote the Fibromyalgia ListServ group, and educate those you come in contact with, by ordering a Fibromyalgia Community T-shirt, sweatshirt, coffee mug or other items from our online store.
The site owner and site webmaster receive no portion of funds from this site, ALL work is done on a volunteer basis.
Information on the CSSA organization is available at. http://www.cssa-inc.org/
If you need more
information on this or wish to talk to someone before helping out, contact
Designed, developed and owned by
The Fibromyalgia Community,
a CSSA Partner, (a 501(c)3 non-profit corporation)
maintained by Chip Davis and Jane Kohler
The Fibromyalgia Community website is a privately owned site.
Copyright (C) 2004 The Fibromyalgia Community.
All Rights Reserved.
August 03, 2004
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