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Organizations dedicated to Fibromyalgia
The Chronic Syndrome Support Association, Inc.
801 Riverside Drive
Lumberton, NC 28358-4625
Web: http://www.cssa-inc.org
Contact Person:
The Chronic Syndrome Support Association, Inc. was founded in order to educate the general population and health-care professionals who lack current knowledge of the research being done, and potential research that needs to be done, on these serious, yet invisible, conditions. Information on the quarterly newsletter and free pamphlet is available at the site.
National Fibromyalgia Partnership Inc. http://www.fmpartnership.org
National Fibromyalgia Partnership
PO Box 160
Linden, VA 22642.5609
phone: 866-725-4404
fax: 866-666-2727
A 501(c)(3) non-profit membership organization committed to the promotion of fibromyalgia education and awareness through the dissemination of quality, medically-accurate information.
The American Fibromyalgia Syndrome Association, Inc.
http://www.afsafund.org/
6380 E. Tanque Verde, Suite D
Tucson, AZ 85715
(520) 733-1570
AFSA is the only charitable organization whose primary mission is to seed research in fibromyalgia syndrome (FMS) and chronic fatigue syndrome (CFS). AFSA acknowledges that patient and physician education, public awareness and advocacy are all important ingredients in aiding the lives of people with FMS and CFS.
Fibromyalgia Network
http://www.fmnetnews.com/
P.O. Box 31750
Tucson, AZ 85751
800/853-2929
Contact: Ms. Kristin Thorson
The Fibromyalgia Network has a list of doctors. Include your name, address, phone number, and the state or states you're interested in. The newsletter is published quarterly and is $19.00 per year.
A clearinghouse for information about advances in research and for patient information on fibromyalgia and chronic fatigue syndrome. Offers free information along with a state-by-state list of referrals to doctors and support groups. The organization also answers general questions about fibromyalgia by phone or mail.
North American Chronic Pain Association of Canada
NACPA http://www.chronicpaincanada.org
Environmental Illness Association of Canada http://www.eisc.ca
536 Dovercourt Ave.
Ottawa AL KH9R
PHONE: 613-728-9493
FAX: 613-728-1715
CONTACT PERSON: Judith Spence EMAIL
The EISC is an advocacy and education providing organization for those affected by environmental illness.
Fibromyalgia Association of Texas
3810 Keele Drive
Garland, TX 75041
972/271-5085
Contact: Ms. Faye Wright
The UK Fibromyalgia site. Here you can find information on FM and have access to a directory of over 50 support groups nationwide.
Alberta Articulator
The FM/ME Society of Alberta
Box 30402
1323 N - 6455 Macleod Tr. SW
Calgary, Alberta, Canada T2H 2W2
FM Forum
Fibromyalgia Association of BC
PO Box 15455 Vancouver, British Columbia, Canada V6B 5B2
phone 604 540-0488
fax 604 520-0481
e-mail: bcfms@alternatives.com
$20.00 Canadian - published quarterly
Inland Northwest Fibromyalgia Association
933 West Third Avenue, Suite 211
Spokane, Washington 99204-1527
phone 509 838-3001
$20.00 US - published quarterly
FM Bulletin
FMS Association of Saskatchewan
Box 7525, Saskatoon, Saskatchewan, Canada S7K 4L4
phone 306 653-0982
published quarterly - $18.00 Canadian
FMS Today
Fibromyalgia Support Group of Winnipeg, Inc.
825 Sherbrook Street
Winnipeg, Manitoba, Canada R3A 1M5
phone 204 772-6979 fax 204 786 0860
$20 Canadian annually
Doug Shore
ME/FM Manual
P.O. Box 2591
Sumas, Washington USA 98295
Country Network
The Journal of the Nth. Rovers M.E./CFS/FM Support Assoc. Inc.
NSW. Australia
PO Box 6024 South Lismore NSW 2480, Australia
$12.00 annually
Fibromyalgia Association UK
PO Box 206
Stourbridge, Wet Midlands, Dy( 8Yl
e-mail:
National Fibromyalgia Research Association
PO Box 500
Salem, OR 97302
http://www.teleport.com/~nfra/Contacts.htm
National Chronic Pain Outreach Association, Inc.
7070 Old Georgetown Road, Suite 100
Bethesda, MD 20814-2429
Telephone: 301-652-4948
Fax: 301-907-0745
Fibromyalgia Association of Texas
5650 Forest Lane
Dallas, TX 75230
USA Fibromyalgia Association
1-614-675-1152
National Institute of Arthritis and Musculoskeletal and Skin Diseases
http://www.nih.gov/niams/
Information Clearinghouse
1 AMS Circle
Bethesda, MD 20892-3675
301/495-4484
TTY: 301/565-2966
Fax: 301/587-4352
The National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse serves the public, patients, and health professionals by disseminating information, locating other information sources, creating health information materials, and participating in a national Federal database on health information. The Web site offers consumer information on scoliosis, arthritis, lupus, osteoporosis, and fibromyalgia.
Arthritis Foundation
http://www.arthritis.org/
P.O. Box 7669
Atlanta, GA 30326
800/283-7800
24-hour recording
404/872-7100
M - F 9 - 5 EST
The Arthritis Foundation supports research to find ways to cure and prevent arthritis and seeks to improve the quality of life for those affected by arthritis. The Foundation offers a variety of programs that can help people with arthritis make life easier and less painful. These services include: self-help courses, water and land-based exercise classes, home study courses, instructional video tapes, public forums, a wide variety of educational brochures and booklets for the lay public (including one on fibromyalgia), a national bimonthly consumer magazine called Arthritis Today, continuing education courses, and publications for health professionals.
Fibromyalgia Association of Florida, Inc.
P.O. Box 14848
Gainesville, FL 32604-4848
904/371-2750
M - F 9 - 5 EST
Sends a free pamphlet on fibromyalgia along with a complimentary copy of the quarterly newsletter The Florida Fibro News. A $25 membership includes a subscription to the newsletter.
American Chronic Pain Association
P.O. Box 850
Rocklin, CA 95677
916/632-0922
(24 hour message)
M - F 8:30 - 5 PST
FAX: 916/632-3208
For people who suffer chronic pain, this association provides a strong support network of over 800 chapters throughout the country. For a $10 donation, members can receive a two-year subscription to the quarterly newsletter The ACPA Chronicle.
Division of Viral and Rickettsial Diseases
National Center for Infectious Diseases
Centers for Disease Control and Prevention
Information Services
1600 Clifton Rd. NE
Mailstop G-18
Atlanta, GA 30333
404/332-4555
(24-hour line)
Provides information on chronic fatigue syndrome for the general public and health care workers. Callers may request written materials by leaving a name and address on the automated voice mail system, or listen to recorded messages regarding transmission and symptoms of chronic fatigue syndrome, testing, treatment and prevention, and trends in occurrence of the disease.
National Chronic Fatigue Syndrome and Fibromyalgia Association
PO Box 18422
Kansas City, MO 64133 816/931-4777(24 hour-message)
Provides information to the public and health professionals on the nature of chronic fatigue and related disorders. Makes referrals to support groups, phone contacts, and physicians.
National Institute of Allergy and Infectious Diseases
NIAID Office of Communications
National Institutes of Health
http://www.niaid.nih.gov/
Building 31, Room 7A-50
Bethesda, MD 20892
Responds to written questions and requests for information. The office provides free single copies of pamphlets, fact sheets, and other appropriate materials.
National Sleep Foundation
http://www.sleepfoundation.org/
729 15th St. NW, 4th floor
Washington, DC 20005
202/347-3471
Founded in 1991, the National Sleep Foundation is a nonprofit organization dedicated to improving the quality of life for the millions of Americans who suffer from sleep disorders and to the prevention of catastrophic accidents related to sleep deprivation or sleep disorders. Responds to written requests for general brochures on sleep. Provides general information on the sleep disorders associated with fibromyalgia and chronic fatigue syndrome. Makes referrals to accredited sleep centers in your area.
CARF -- The Rehabilitation Accreditation Commission
http://carf.org
4891 E. Grant Rd.
Tucson, AZ 85712
520/325-1044
CARF, the Rehabilitation Accreditation Commission, is a private, not-for-profit organization that promotes quality rehabilitation services. It does this by establishing standards of quality for organizations to use as guidelines in developing and offering their programs or services to consumers. CARF uses the standards to determine how well an organization is serving its consumers and how it can improve.
Devin Starlanyl's FM/MPS website
. This is an information gathering list only. It is non-interactive, you may not post. It is geared towards research and finding a cure for CFS/FMS. Very Informative. To subscribe send a message to the above address. leave the subject line blank and in the body of the message put SUBSCRIBE CO-CURE your first name Your last name
Fibromyalgia Newsgroup
alt.med.fibromyalgia
This newsgroup used to be linked to the mailing list Fibrom-L, but since October 1997 this arrangement has changed. It has always been a busy group - one of the most popular of the health-oriented newsgroups - and is likely to continue to be even with the splitting off of the mailing list. Members discuss symptoms and medications, share experiences and offer support to each other. The newsgroup is not moderated.
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