FMS Community Newsletter #29
Monday, Oct. 14, 2002 

 

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Featured link: Interview with Chip Davis

Chip Davis, a long time advocate on behalf of Fibromyalgia and Chronic
Fatigue and Immune Dysfunction was kind enough to share his experience
in the advocacy movement. He talks about his life and how the chronic
illness caused him to exchange successful business pursuits for new directions
in life. Chip has a wealth of experience and his views of advocacy are
based on the depth of contact with and experience organizing in the patient
community.
This interview has some particularly key insights for men with FMS or
CFIDS.

Check it out: http://www.ourfm-cfidsworld.org/html/chip_davis.html
AOL users: <a
href="http://www.ourfm-cfidsworld.org/html/chip_davis.html">Read it
here</a>
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This week's news:
1) Organics Simplified
2) Help for special needs families
3) A place for pediatric patients
4) How are you spending your time?
5) Fibromyalgia: Improving through Fitness
6) Against The Grain
7) WHO publishes information on endocrine disrupting chemicals
8) Forum for teenage children of parents with chronic illness
9) What you need to know about stretching and flexibility
10) Substance P: A New Era, a New Role
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1) Organics Simplified

There are more choices in organic food than ever -- it's a
$9-billion-a-year industry that's increasing more than 20 percent
annually. Federal regulations, including strict organic labeling
standards enforced by the U.S. Department of Agriculture, go into effect
in October. These rules consolidate all interpretations of "organic"
into one set of national standards for growing and processing organic
foods.
What the government regs don't tell you is when organic might be a
better choice than conventional food.

Check it out:
http://www.health.com/health/food/article/0,15669,356699,00.html
AOL users: <a
="http://www.health.com/health/food/article/0,15669,356699,00.html">Read
it here</a>
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2) Help for special needs families

Our website, Special Needs Family Friendly Fun, is building a directory
of websites that enhance the quality of family life with special needs.

Check it out: http://www.family-friendly-fun.com/links/themeindex.html
AOL users: <a
href="http://www.family-friendly-fun.com/links/themeindex.html">Read it
here</a>
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3) A place for pediatric patients

The Pediatric Network was cofounded by Mary Robinson and Rebecca Moore
as a place for anyone with an interest in Chronic Fatigue Syndrome,
Fibromyalgia or Orthostatic Intolerance in children, adolescents, and
young adults to come together for a common cause. While there are a
growing number of young people being diagnosed with these ailments,
there has not been a comprehensive place for youth, parents, educators,
or doctors, to learn about their management.

Check it out: http://www.pediatricnetwork.org
AOL users: <a href="http://www.pediatricnetwork.org">Read it here</a>
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4) How are you spending your time?

Does urgency rule your life? Are you frequently Stressed Out? How do
you spend your time? Access our Personal Insight Profiles from your
computer and rate your own effectiveness.

Check it out: http://www.franklincovey.com/ez/asector/
AOL users: <a href="http://www.franklincovey.com/ez/asector/"> Read it
here</a>
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5) Fibromyalgia: Improving through Fitness

A doctor who has fibromyalgia once told me: "You can have weak muscles
that hurt, or strong muscles that hurt." This statement made a big
impression on me. Although exercise will not cure the pain and
exhaustion of fibromyalgia, muscle endurance increases our capabilities.
The message in the medical literature is clear: people with fibromyalgia
who are physically fit suffer fewer symptoms. The key question is how we
get there. How can we get in shape when it hurts just to get out of bed?
The answer, like most aspects of dealing with this condition, is not
simple. It requires discipline, faith, and lots of patience. But
sticking to a personalized exercise program can really pay off.

Check it out:
http://www.immunesupport.com/library/bulletinarticle.cfm?ID=3875
AOL users: <a
="http://www.immunesupport.com/library/bulletinarticle.cfm?ID=3875">Read
it here</a>
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6) Against the grain

If you have a chronic illness - or are just feeling run down - the
answer could lie in your bread bin. Jerome Burne reveals why more of us
should steer clear of wheat

Check it out:
http://www.guardian.co.uk/health/story/0,3605,793423,00.html
AOL users: <a
href="http://www.guardian.co.uk/health/story/0,3605,793423,00.html">Read
it here</a>
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7) WHO publishes information on endocrine disrupting chemicals

A new World Health Organization publication concludes that the evidence
that human health has been adversely affected by exposure to endocrine
disrupting chemicals is generally weak, but that further research and
information is needed.

Check it out: http://www.who.int/pcs/pcs_new.html
AOL users: <a href="http://www.who.int/pcs/pcs_new.html">Read it
here</a>
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8) Forum for teenage children of parents with chronic illness

Moms and Dads! Do your kids need a place to discuss what it's like
having a parent with a chronic illness? We've got a message board just
for them, with a teen forum leader!

Check it out: http://www.restministries.org/pro-kidsandteens.htm
AOL users: <a
href="http://www.restministries.org/pro-kidsandteens.htm">Read it
here</a>
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9) What you need to know about stretching and flexibility

This document is a modest attempt to compile a wealth of information in
order to answer some frequently asked questions about stretching and
flexibility. It is organized into chapters covering the following
topics:

1. Physiology of Stretching
2. Flexibility
3. Types of Stretching
4. How to Stretch

Check it out: http://www.enteract.com/~bradapp/docs/rec/stretching/
AOL users: <a
href="http://www.enteract.com/~bradapp/docs/rec/stretching/">Read it
here</a>
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10) Substance P: A New Era, a New Role

Editor's Note: Possibly involved in fibromyalgia, Substance P is also
believed to be a factor in psoriasis, which affects the autoimmune
system.

Substance P has been extensively studied and is considered the
prototypic neuropeptide of the more than 50 known neuroactive molecules.
The understanding of substance P has evolved beyond the original concept
as the pain transmitter of the dorsal horn. Animal and genetic research,
recent developments of nonpeptide substance P antagonists, and important
changes in the understanding of neurotransmission have each contributed
to the current understanding of substance P.

Check it out: http://www.medscape.com/viewarticle/409781_print
AOL users: <a
href="http://www.medscape.com/viewarticle/409781_print">Read it here</a>
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If you have enjoyed this newsletter, please go to
http://www.fmscommunity.org/contributions.htm to see how you can help
The Fibromyalgia Community stay alive.
AOL users: <a href="http://www.fmscommunity.org/contributions.htm">Read
it here</a>