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Organizations dedicated to
The Chronic Syndrome Support Association, Inc.
801 Riverside Drive
Lumberton, NC 28358-4625
The Chronic Syndrome Support Association, Inc. was founded in order to educate the general
population and health-care professionals who lack current knowledge of the research being
done, and potential research that needs to be done, on these serious, yet invisible,
conditions. Information on the quarterly newsletter and free pamphlet is available
at the site.
Fibromyalgia Partnership Inc. http://www.fmpartnership.org
National Fibromyalgia Partnership
PO Box 160
Linden, VA 22642.5609
non-profit membership organization committed to the promotion of fibromyalgia
education and awareness through the dissemination of quality, medically-accurate
American Fibromyalgia Syndrome Association, Inc.
6380 E. Tanque Verde, Suite D
Tucson, AZ 85715
AFSA is the only charitable organization whose primary mission is to seed research in
fibromyalgia syndrome (FMS) and chronic fatigue syndrome (CFS). AFSA acknowledges that
patient and physician education, public awareness and advocacy are all important
ingredients in aiding the lives of people with FMS and CFS.
P.O. Box 31750
Tucson, AZ 85751
Contact: Ms. Kristin Thorson
The Fibromyalgia Network has a list of doctors. Include your name, address, phone number,
and the state or states you're interested in. The newsletter is published quarterly and is
$19.00 per year.
A clearinghouse for
information about advances in research and for patient information on fibromyalgia and
chronic fatigue syndrome. Offers free information along with a state-by-state list of
referrals to doctors and support groups. The organization also answers general questions
about fibromyalgia by phone or mail.
Chronic Pain Association of Canada
Illness Association of
536 Dovercourt Ave.
Ottawa AL KH9R
CONTACT PERSON: Judith Spence EMAIL
The EISC is an advocacy and education providing organization for those affected by
Association of Texas
3810 Keele Drive
Garland, TX 75041
Contact: Ms. Faye Wright
UK Fibromyalgia site. Here you can find information on FM and have
access to a directory of over 50 support groups nationwide.
The FM/ME Society of Alberta
1323 N - 6455 Macleod Tr. SW
Calgary, Alberta, Canada T2H 2W2
Fibromyalgia Association of BC
PO Box 15455 Vancouver, British Columbia, Canada V6B 5B2
phone 604 540-0488
fax 604 520-0481
$20.00 Canadian - published quarterly
Inland Northwest Fibromyalgia Association
933 West Third Avenue, Suite 211
Spokane, Washington 99204-1527
phone 509 838-3001
$20.00 US - published quarterly
FMS Association of Saskatchewan
Box 7525, Saskatoon, Saskatchewan, Canada S7K 4L4
phone 306 653-0982
published quarterly - $18.00 Canadian
Fibromyalgia Support Group of Winnipeg, Inc.
825 Sherbrook Street
Winnipeg, Manitoba, Canada R3A 1M5
phone 204 772-6979 fax 204 786 0860
$20 Canadian annually
P.O. Box 2591
Sumas, Washington USA 98295
The Journal of the Nth. Rovers M.E./CFS/FM Support Assoc. Inc.
PO Box 6024 South Lismore NSW 2480, Australia
Fibromyalgia Association UK
PO Box 206
Stourbridge, Wet Midlands, Dy( 8Yl
National Fibromyalgia Research Association
PO Box 500
Salem, OR 97302
Chronic Pain Outreach Association, Inc.
7070 Old Georgetown Road, Suite 100
Bethesda, MD 20814-2429
Association of Texas
5650 Forest Lane
Dallas, TX 75230
USA Fibromyalgia Association
Institute of Arthritis and Musculoskeletal and Skin Diseases
1 AMS Circle
Bethesda, MD 20892-3675
The National Arthritis
and Musculoskeletal and Skin Diseases Information Clearinghouse serves the public,
patients, and health professionals by disseminating information, locating other
information sources, creating health information materials, and participating in a
national Federal database on health information. The Web site offers consumer information
on scoliosis, arthritis, lupus, osteoporosis, and fibromyalgia.
P.O. Box 7669
Atlanta, GA 30326
M - F 9 - 5 EST
The Arthritis Foundation
supports research to find ways to cure and prevent arthritis and seeks to improve the
quality of life for those affected by arthritis. The Foundation offers a variety of
programs that can help people with arthritis make life easier and less painful. These
services include: self-help courses, water and land-based exercise classes, home study
courses, instructional video tapes, public forums, a wide variety of educational brochures
and booklets for the lay public (including one on fibromyalgia), a national bimonthly
consumer magazine called Arthritis Today, continuing education courses, and
publications for health professionals.
Association of Florida, Inc.
P.O. Box 14848
Gainesville, FL 32604-4848
M - F 9 - 5 EST
Sends a free pamphlet on
fibromyalgia along with a complimentary copy of the quarterly newsletter The Florida Fibro
News. A $25 membership includes a subscription to the newsletter.
P.O. Box 850
Rocklin, CA 95677
(24 hour message)
M - F 8:30 - 5 PST
For people who suffer
chronic pain, this association provides a strong support network of over 800 chapters
throughout the country. For a $10 donation, members can receive a two-year subscription to
the quarterly newsletter The ACPA Chronicle.
Viral and Rickettsial Diseases
National Center for Infectious Diseases
Centers for Disease Control and Prevention
1600 Clifton Rd. NE
Atlanta, GA 30333
Provides information on
chronic fatigue syndrome for the general public and health care workers. Callers may
request written materials by leaving a name and address on the automated voice mail
system, or listen to recorded messages regarding transmission and symptoms of chronic
fatigue syndrome, testing, treatment and prevention, and trends in occurrence of the
Fatigue Syndrome and Fibromyalgia Association
PO Box 18422
Kansas City, MO 64133 816/931-4777(24 hour-message)
Provides information to
the public and health professionals on the nature of chronic fatigue and related
disorders. Makes referrals to support groups, phone contacts, and physicians.
Institute of Allergy and Infectious Diseases
NIAID Office of Communications
National Institutes of Health
Building 31, Room 7A-50
Bethesda, MD 20892
Responds to written questions and requests for information. The office provides free
single copies of pamphlets, fact sheets, and other appropriate materials.
729 15th St. NW, 4th floor
Washington, DC 20005
Founded in 1991, the
National Sleep Foundation is a nonprofit organization dedicated to improving the quality
of life for the millions of Americans who suffer from sleep disorders and to the
prevention of catastrophic accidents related to sleep deprivation or sleep disorders.
Responds to written requests for general brochures on sleep. Provides general information
on the sleep disorders associated with fibromyalgia and chronic fatigue syndrome. Makes
referrals to accredited sleep centers in your area.
CARF -- The
Rehabilitation Accreditation Commission
4891 E. Grant Rd.
Tucson, AZ 85712
CARF, the Rehabilitation
Accreditation Commission, is a private, not-for-profit organization that promotes quality
rehabilitation services. It does this by establishing standards of quality for
organizations to use as guidelines in developing and offering their programs or services
to consumers. CARF uses the standards to determine how well an organization is serving its
consumers and how it can improve.
Devin Starlanyl's FM/MPS
Co-Cure E-Mail list. This is an information gathering list only. It is non-interactive, you may
not post. It is geared towards research and finding a cure for CFS/FMS. Very Informative.
To subscribe send a message to the above address. leave the subject line blank and in the
body of the message put SUBSCRIBE CO-CURE your first name Your last name
This newsgroup used to be linked to the mailing list Fibrom-L, but since October 1997 this
arrangement has changed. It has always been a busy group - one of the most popular of the
health-oriented newsgroups - and is likely to continue to be even with the splitting off
of the mailing list. Members discuss symptoms and medications, share experiences and offer
support to each other. The newsgroup is not moderated.