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FMS Community Newsletter #27 Tuesday, August 26, 2002 Subscription update: 1872 subscribers and 19 new subscribers. Welcome!
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Members of the FMS community have generously contributed in order to keep the site and newsletter running, but we still need your help.
Please help keep the FMS Community alive by making a contribution if you are able; any amount will help. Please go to http://www.fmscommunity.org/contributions.htm to see how you can pitch in.
AOL users: <a href="http://www.fmscommunity.org/contributions.htm">Read it here</a>
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Featured link: How To Pace Yourself

Pacing is often recommended as a strategy for gaining control of symptoms and bringing stability. But how do you do it? This week's feature article at the CFIDS/Fibromyalgia Self-Help program web site reports what students in the CFIDS/Fibromyalgia Self-Help program have found helpful. (Third in the eight-part series "What Works for Managing CFIDS and Fibromyalgia.")

Check it out: http://www.CFIDSselfhelp.org AOL users: <a href="http://www.CFIDSselfhelp.org">Read it here ================================================================= =================================================================
This week's news:
1) A call for world awareness
2) Meet advocate Aimee Hall
3) Can Martians and Venusians take the same medications?
4) Individualize your treatment options
5) Strategies for maintaining positive thoughts
6) Do your thoughts influence your sleep?
7) Forget it! Ginkgo supplements don't help memory
8) Gene linked to restless legs syndrome in women
9) The Golden Rules of great sleep
10) The Influence of Age on Fibromyalgia Symptoms
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1) A call for world awareness

While the advocacy movement has achieved wider recognition for CFIDS and Fibromyalgia, research budgets are far behind the number of diagnoses.
A call for cooperation in planning and coordinating next year's awareness events has been issued by Our FM-CFS World, Inc. Tentative plans are to hold a chat room meeting in September for a basic discussion of the form of this cooperation.

If you have any questions, please contact Anne-Marie Vidal at shades-@erols.com or Michelle Woodward at M32-@aol.com

Check it out:
http://www.ourfm-cfidsworld.org/html/the_our_world_beat.html AOL users: <a href="http://www.ourfm-cfidsworld.org/html/the_our_world_beat.html">Read it here</a>

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2) Meet advocate Aimee Hall

Meet Aimee Hall, an advocate and organizer who overcame her own ill health to start a support group. Aimee's support group quickly grew and became several groups with over 200 members in the metropolitan Philadelphia area. Her organizational skills are amazing, as you will see here. She is a firm believer in laughter, joy and advocacy and proof that one person can make a difference.

Check it out: http://www.ourfm-cfidsworld.org/html/aimee_hall.html AOL users: <a href="http://www.ourfm-cfidsworld.org/html/aimee_hall.html">Read it here</a>

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3) Can Martians and Venusians take the same medications?

From Today's Health and Wellness Club Monthly News

Men and women are different in many ways, but until now, doctors have prescribed the same medications to each - that is, if they are suffering from the same condition. An increasing number of studies indicate, however, that several widely used drugs, including antihistamines, antibiotics and pain relievers, may perform differently in men than they do in women, sometimes causing unwanted side effects.

Phyllis Greenberger, MSW, president and CEO of the Society for Women's Health Research in Washington, D.C., notes that morphine-like painkillers called kappa-opioids work better for women than men and the opposite is true of anesthesia. She explains that a lot of factors could be responsible, including the varying rate at which men and women metabolize drugs, the disparate size of men's and women's bodies and organs and the rate at which drugs pass through the gastrointestinal system.

To keep yourself safe, ask your doctor about the side effects (both general and gender-specific) of any new drug you are prescribed, as well as any safer alternatives that might be available. Also be sure to ask about any potential interaction with other drugs, if you are taking any.

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4) Individualize your treatment options

No one medical treatment can control all of the symptoms of fibromyalgia. Most individual treatment options only control one or two of the symptoms. The most successful treatment program combines several different medications and/or therapies to bring about the greatest amount of control. The key is to finding the right combination that specifically helps you to control your FM.

Check it out: http://www.fmaware.org/newsletter/treatmentoption.htm AOL users: <a href="http://www.fmaware.org/newsletter/treatmentoption.htm">Read it here</a>
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5) Strategies for maintaining positive thoughts

"Have a positive attitude." Deborah A. Barrett, Ph.D., writes, "How many times have we heard that one? While our emotions cannot cause fibromyalgia or chronic fatigue syndrome, they no doubt affect our symptoms. But how can we maintain good thoughts when our bodies feel so lousy?" Here are ten great strategies.

Read the article at http://www.immunesupport.com/library/bulletinarticle.cfm?ID=3802 AOL users: <a ="http://www.immunesupport.com/library/bulletinarticle.cfm?ID=3802">Read it here</a>
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6) Do your thoughts influence your sleep?

The subconscious mind is a powerful tool that controls every aspect of our lives. The way we think dictates the way we live. In a nutshell -
positive thoughts lead to a good life; negative thoughts lead to a life that often falls far below what we expect or deserve.

Check it out:
http://sleepdisorders.about.com/library/weekly/aa080302a.htm AOL users: <a href="http://sleepdisorders.about.com/library/weekly/aa080302a.htm">Read it here</a>
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7) Forget it! Ginkgo supplements don't help memory

A new study suggests ginkgo supplements do nothing to quickly improve memory in healthy people, a finding that goes against years of well-publicized claims that helped turn the supplements into a multimillion-dollar industry.

Check it out: http://www.msnbc.com/news/796753.asp?pne=msn#BODY AOL users: <a href="http://www.msnbc.com/news/796753.asp?pne=msn#BODY">Read it here</a>
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8) Gene linked to restless legs syndrome in women

Genetic association analysis suggests that the high-activity form of the gene encoding monoamine oxidase (MAOA) may be associated with the etiology and extent of restless legs syndrome (RLS) in women, Canadian investigators report in the July 23rd issue of Neurology.

Check it out:
http://mp.medscape.com/cgi-bin1/flo?y=hRw30D8q1f0DbD0FLx70AM AOL users: <a href="http://mp.medscape.com/cgi-bin1/flo?y=hRw30D8q1f0DbD0FLx70AM">Read it here</a>
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9) The Golden Rules of great sleep

Cornell psychologist James B. Maas, Ph.D., qualifies as one of the nation’s leading sleep advocates. In his book Power Sleep (HarperCollins), he implores us to sleep not necessarily more but more efficiently, so we can always perform at our best. Here are his Golden Rules of sleep.

Check it out:
http://www.ediets.com/news/article.cfm?article_id=6350&code=24044 AOL users: <a "http://www.ediets.com/news/article.cfm?article_id=6350&code=24044">Read it here</a>
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10) The Influence of Age on Fibromyalgia Symptoms

Objectives:
Studies of the influence of age on health and well-being in chronically ill patients have produced mixed findings. This study examined young (20-39), middle-aged (40-59), and older (60-85) individuals with fibromyalgia (FMS), a chronic pain condition.
The purpose of this study was to determine whether there were differences among the age groups in symptomatology and to examine potential mediating psychosocial variables.

Methods:
Participants were 600 (95% female, mean age = 54, SD = 11) diagnosed FMS patients who were members of a health maintenance organization.
Multivariate analyses of covariance were used to examine differences.

Results:
There were significant differences among the age groups in most of the variables: With increasing age symptom duration increased but FMS symptomatology decreased. No age differences were found among the psychosocial mediators. The results suggest that the effects of FMS decrease over time.

Keywords: fibromyalgia (FMS), age, symptoms, health status

Language: English Document Type: Research article ISSN: 0898-2643 SICI (online): 0898-2643143370384

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